05/23/2026
I’m getting kind of emotional thinking about how I found out I have Lupus.
6 months after I had my son, I was free to do all the things I wanted again.
Weightlifting, painting, playing video games, running my business, getting into a rhythm, playing with my baby… all the things.
Then, around May 2024, I started getting some horrible pains in my wrists, toes, ankles, and fingers.
It got worse as time went on, but by July, I was in so much pain I couldn’t open my hands at all.
My hands shriveled so bad I had to pry them open.
When I went to my (not usual, long story about Tricare) Primary Care doctor, he told me “You must be pregnant.”
I told him I definitely was not (for reasons I’ll leave out, lol) and he told me to get a pregnancy test anyway.
Negative. (surprise surprise 🙄)
However, my blood work came back, and my inflammation panel was completely off the charts.
So much so that the 1 year wait to get into a rheumatologist got decreased to 6 months. I felt like I was spiraling.
6 months I waited for a diagnosis.
6 months without the gym, barely being able to wake up, not being able to hold my son, not being able to do my hobbies without debilitating pain, not being able to work on my business… nothing.
I gained a ton of weight, I lost all my good mental health, and I was truly in one of the lowest times of my life.
Eventually, I was diagnosed with Lupus. An autoimmune condition that can effect well... literally everything in your body.
I suffer from:
🦋 Extreme fatigue and short endurance spans
🦋 Butterfly rash + joint redness
🦋 Swelling + edema
🦋 Brain fog
🦋 Joint pain, muscle stiffness, and hypermobility
🦋 Swaying mood swings, depression, and anxiety
🦋 Raynaud's Syndrome
Thankfully, I am in remission of my Lupus and I am medicated, healthy, and on an upward trend. I have not had a *bad* flare in a while (I have definitely had bad days, though).
I say all of this not for sympathy, but to remind you that
1) your health and rest is SO important and
2) to be an advocate for yourself, always, especially when you are undeniably effected by something.
Hopefully this is a good contribution to Lupus Awareness Month. 🦋💜